View source for Minutes - Patient Dossier WG 2024-10-23

=== Attendees ===
* Bart Decuypere
* Benny Tops
* Bruno Neckebroek
* José Costa Teixeira
* Karlien Erauw
* Nele Averens
* Tim Bogaert

=== Excused/absent === 
* Christopher Hex, Fibricheck
* Jean-Michel Polfliet, eHealth platform/HL7 Belgium
* Peter Van Vooren, Remecare

=== Agenda === 
* Continue our WG way of working and FHIR profiling

=== Minutes ===
* Possible FHIR profiles/scope is confirmed vital signs, observations (in general)
::* Remecare has already done some work on observations
::* present parties are aligned on vital signs

* a FHIR profile is not enough, we need extra data on top of the FHIR profile/implementation guide
* We agreed to work with template for a care path, explaining the usage and guidance on which FHIR resources to use
::* vital signs observation: ok for present parties
::* start with own documentation that is attached to the implementation guide including the template 
::::* to add therapies as part of the IG and link to the observations
::* work from Remecare should be published on HL7 Belgium, repository patient-monitoring
::::* work related to Fibricheck will be moved to a branch as it is not so applicable anymore 

* basic building blocks, quantitave topics have to be agreed upon
* afterwards qualitative parameters have to be agreed upon 
* The [https://hl7-be.github.io/patient-monitoring/StructureDefinition-PatientMonitoring.html logical model] & the [https://hl7-be.github.io/patient-monitoring/StructureDefinition-PatientMonitoringObservation.html FHIR IG] are here

* Discussion on how we want to standardise
::* each care path has its own requirements regarding granularity

::::::* is also applicable for orthopedics but more specific, intense after the surgery where more data are captured
::::* reports can already be made available through the hubs, but not in FHIR
::::* the FHIR IG can contain an URL pointing to the dashboard and/or pdf 
::::::* are these linked to diagnostic report or to obversation?
::::::* we need to agree on where the line is b/w observation and diagnostic report
:::::* we have to investigate where we want to include the PDF and URL (to dashboard)
:::::* F.e. a measurement is done during 60 sec for which there is an outcome and a PDF report is generated
:::::* FHIR R5 has value attachment, but it is not available in R4 yet

::* goal is to profile observations: capture of a parameter, some qualitative, some quantative 
::::* we need an exhaustive list of quantative observations, we will start working on this [https://docs.google.com/spreadsheets/d/1sk4dY9VfKaVQuIhrmO3l-pFRDIBCiD4g9SbIGNBFUb0/edit#gid=0 here]

* Work on some examples has already been done, see [https://build.fhir.org/ig/hl7-be/patient-monitoring/artifacts.html#example-example-instances section 3.0.5 here] 

* We agree to work on pull requests and to approve these in this WG, the agreements on this will happen in between the meetings 

* Benny points out a nice example of an IG: https://implementatiegids.zorgviewer.nl/index.html

=== Action items ===
* Review the logical model
* Move forward with pull requests to be able to approve them
* Provide telemonitoring observations examples 

=== Next meeting ===
Next WG meeting:  Wednesday 20 November 11AM CET (Nov 6 meeting will be cancelled as work is ongoing)