Minutes - Patient Dossier WG 2024-10-23

Attendees

• Bart Decuypere
• Benny Tops
• Bruno Neckebroek
• José Costa Teixeira
• Karlien Erauw
• Nele Averens
• Tim Bogaert

Excused/absent

• Christopher Hex, Fibricheck
• Jean-Michel Polfliet, eHealth platform/HL7 Belgium
• Peter Van Vooren, Remecare

Agenda

• Continue our WG way of working and FHIR profiling

Minutes

• Possible FHIR profiles/scope is confirmed vital signs, observations (in general)

• Remecare has already done some work on observations
• present parties are aligned on vital signs

• a FHIR profile is not enough, we need extra data on top of the FHIR profile/implementation guide
• We agreed to work with template for a care path, explaining the usage and guidance on which FHIR resources to use

• vital signs observation: ok for present parties
• start with own documentation that is attached to the implementation guide including the template

• to add therapies as part of the IG and link to the observations

• work from Remecare should be published on HL7 Belgium, repository patient-monitoring

• work related to Fibricheck will be moved to a branch as it is not so applicable anymore

• basic building blocks, quantitave topics have to be agreed upon
• afterwards qualitative parameters have to be agreed upon
• The logical model & the FHIR IG are here

• Discussion on how we want to standardise

• each care path has its own requirements regarding granularity

• is also applicable for orthopedics but more specific, intense after the surgery where more data are captured

• reports can already be made available through the hubs, but not in FHIR
• the FHIR IG can contain an URL pointing to the dashboard and/or pdf

• are these linked to diagnostic report or to obversation?
• we need to agree on where the line is b/w observation and diagnostic report

• we have to investigate where we want to include the PDF and URL (to dashboard)
• F.e. a measurement is done during 60 sec for which there is an outcome and a PDF report is generated
• FHIR R5 has value attachment, but it is not available in R4 yet

• goal is to profile observations: capture of a parameter, some qualitative, some quantative

• we need an exhaustive list of quantative observations, we will start working on this here

• Work on some examples has already been done, see section 3.0.5 here

• We agree to work on pull requests and to approve these in this WG, the agreements on this will happen in between the meetings

• Benny points out a nice example of an IG: https://implementatiegids.zorgviewer.nl/index.html

Action items

• Review the logical model
• Move forward with pull requests to be able to approve them
• Provide telemonitoring observations examples

Next meeting

Next WG meeting: Wednesday 20 November 11AM CET (Nov 6 meeting will be cancelled as work is ongoing)