Minutes - Patient Dossier WG 2025-10-13

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Attendees

  • Benny Verhamme
  • Brian Thieren
  • Ivan Coppieters
  • José Costa Teixeira
  • Karlien Erauw
  • Sabine Withofs
  • Walter Callebaut
  • Werner De Mulder

Excused

  • Anne Nerenhausen
  • Brecht Van Vooren
  • Etienne Cantineau
  • Jan Lenssens
  • Hanne Vuegen
  • Jan Lenssen
  • Jean-Michel Polfliet
  • Marcelo Romero-Cors
  • Philippe Baise

Agenda

  • Review the FHIR work on Child record FHIR IG

Meeting minutes

  • FHIR draft logical model has undergone some changes following our previous meeting, not yet merged
  • refusalOfHearingTest" is no longer be part of the structured data and is removed from the model
  • eye results: issues should have removed, renaming has been done eyeScreeningOutcome, including the 3 individual observations
  • inspectionPupilabnormal
  • eyeMovementAndPosition
  • eyeRemarks

So there is no result for each eye individually for this beObservations • General remark about the inspectionPupilAbnormal/eyeMovementAndPosition/eyeRemarks: Each of this observations can be performed separately and therefore be on a different day. • A general conclusion is that the age does not need to be explicitly mentioned anywhere, as it can always be derived from the execution/observation date. This is because the date of birth is an inherent attribute of the subject (BeModelPatient). • It is recommended not to implement a name change for eyeScreening. The eyeScreening is a result from a test with a device. • The eyeResults constitute the findings of a clinical research/examination. The renaming to “eyeObservations” is maybe not the best choice. Perhaps it could include a reference to a clinical examination/research? • The descriptions of several elements are not yet adequate. For example: The “Date”elements by inspectionPupilAbnormal/eyeMovementAndPosition/eyeRemarks have the following wrong description: “Date of eye screening”


  • other changes have been made
  • following the int'l discussions, how to do a pregnany duration which is about more than 1 person (pregnant mother & baby/babies) so patient/baby is the subject (in child record) and the mother is the focus and is optional (in case of adoption f.e.), cardinality will be changed in the model
  • there are some observations in the model, these will be changed in the model to be in lign
  • severeHeadTrauma is not observation, it is a problem and will be a BeProblem careset
  • BeDocument: still to be decided in which repo to put, here it will become a dependency
  • we will have 3 caresets: observation, problem & document
  • the mother's data won't have to be documented
  • once this is OK, we can move to a final profile
  • valuesets: will be published separately but architecture is not yet ready
  • Alignment is necessary b/w the business documentation and the FHIR draft logical model
  • Ivan will update the Business Requirements once the FHIR model is stable

Action items

  • review the proposed FHIR IG
  • to decide where to put in BeDocument: in repo core or core clinical ?

Next meeting

  • TBC: Monday XX October at 10AM
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