Difference between revisions of "Minutes - Patient Dossier WG 2023-08-24"

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draft / to be reworked
 
 
 
=== Attendees ===
 
=== Attendees ===
 
* Anne Nerenhausen
 
* Anne Nerenhausen
 +
* Alexis Van Zeveren
 
* Bart Decuypere  
 
* Bart Decuypere  
 
* Félix De Tavernier
 
* Félix De Tavernier
* Isabelle Pollet
+
* Hanne Vuegen
 +
* Hans De Keersmaeker
 
* Jean-Michel Polfliet
 
* Jean-Michel Polfliet
* Jens Penny
 
* José Costa Teixeira
 
 
* Karlien Erauw
 
* Karlien Erauw
 
* Pablo Christiaens
 
* Pablo Christiaens
* Veerle Michiels
+
* Sam Jocqué
  
 
=== Excused ===
 
=== Excused ===
* Alexis Van Zeveren
 
 
* Brecht Van Vooren
 
* Brecht Van Vooren
 
* Filoretta Velica  
 
* Filoretta Velica  
* Hanne Vuegen
+
* Isabelle Pollet
* Hans De Keersmaeker
+
* Jens Penny
 +
* José Costa Teixeira
 
* Nick Hermans
 
* Nick Hermans
 
* Philippe Baise
 
* Philippe Baise
* Sam Jocqué
 
 
* Tom De Backer
 
* Tom De Backer
 +
* Veerle Michiels
 
* Walter Bollaert  
 
* Walter Bollaert  
  
 
=== Agenda ===
 
=== Agenda ===
* Review business rules document as the first step towards a Belgian IG for patient will
+
* Review business rules document & resolve issue/questions
  
 
=== Minutes ===
 
=== Minutes ===
 
* A new version of the business rules document has been distributed to the WG members last Monday [https://docs.google.com/document/d/1QGEKMd4OkXJRIr-EC2qeaqg84Bw5G7gj/edit?usp=drive_link&ouid=105469359652835948544&rtpof=true&sd=true in NL] and [https://docs.google.com/document/d/1Avg27yw7gJB0KqfOhqh5vLsj2187Y8e-/edit?usp=drive_link&ouid=105469359652835948544&rtpof=true&sd=true French]:
 
* A new version of the business rules document has been distributed to the WG members last Monday [https://docs.google.com/document/d/1QGEKMd4OkXJRIr-EC2qeaqg84Bw5G7gj/edit?usp=drive_link&ouid=105469359652835948544&rtpof=true&sd=true in NL] and [https://docs.google.com/document/d/1Avg27yw7gJB0KqfOhqh5vLsj2187Y8e-/edit?usp=drive_link&ouid=105469359652835948544&rtpof=true&sd=true French]:
 +
::* see also in [https://github.com/hl7-be/patientwill/issues/12 issue 12]
 +
::* we go briefly over the document
 +
::* please have a look at the document and raise your questions or remarks by next meeting
  
 +
* The work on the implementation guide has started
 +
::* [https://build.fhir.org/ig/hl7-be/patientwill/branches/issue-1/ issue 1 refers to the work on the logical model]
  
 +
* We deal with the questions raised in [https://github.com/hl7-be/patientwill/issues issues, see here]
 +
::* [https://github.com/hl7-be/patientwill/issues/11 issue 11]: consent.scope relation vs consent.provisioncode
 +
::::* the will code will be made mandatory in the logical model as this corresponds with the most important information, it corresponds with consent provision code in FHIR
 +
::::* [https://hl7.org/FHIR/R4/valueset-consent-scope.html the category is FHIR int'l model] is mandatory and is very similar to scope
 +
::::* more investigation is necessary by eHealth platform
  
-- old minutes
+
::* [https://github.com/hl7-be/patientwill/issues/10 issue 10]: performer vs organisation
 +
::::* the representative (mandaathouder) is in the logical model but not in the IG yet --> it is the custodian
 +
::::* where do we get the INSZ number for a notary/judge ?
 +
::::* do we need another type of representative ? trusted person?
 +
::::* can the custodian be the same person as the performer ? normally not
 +
::::* concepts need to be clarified by INAMI
  
::* other remark: will FHIR R4 or R5 will be used ?
+
::* [https://github.com/hl7-be/patientwill/issues/9 issue 9]: update/remove links to artefacts
::::* significant decision to be made
+
::::* it is a temporary version of the IG, the links will be updated by eHealth platform
::::* a new WG will be set-up after the holidays on R4/R5 for all the projects by eHealth platform/HL7 Belgium
 
::::* [https://github.com/ehealthplatformstandards/KmehrFhirTransitionVersioning discussion exists on github with 4 projects] for which the [https://github.com/ehealthplatformstandards/BelgianProfileVersioningStrategy versioning is a subproject]
 
::::::* please note that R4b is not an official version, it doesn't work and is not supported
 
  
::* question: WillCategory is not mandatory, it might become Must Support
+
::* [https://github.com/hl7-be/patientwill/issues/8 issue 8]: kmehr/FHIR mapping
::::* based on the category specific business rules will be defined
+
::::* for all existing documents in kmehr and the valuesets used there, a mapping to the FHIR valuesets is needed
::::* it might be necessary to become mandatory as otherwise it will not be sent
+
::::* how are we going to tackle this ?
::* valuesets: will they be custom ones or Snomed CT ones ?
+
::::::* see 6.2.1 and 6.2.2 in the business rules WillCategory and WillCode
::::* a process is started to have them in Snomed CT, it will be decided by the NRC terminology centre ; currently the ones mentioned are the kmehr ones. Not sure whether the kmehr ones will be intermediate ones before the Snomed ones are available. Still to be determined whether the Snomed ones will be available on time
+
::::::* we will only add values to the existing kmehr values
::::* NRC will maintain the codes
+
::::::::* it seems that some kmehr values have been removed and some have not been mapped
::::* kmehr value sets will have to be mapped into FHIR value sets and this mapping will have to be managed (version, publication): who will do this ?
+
::::* the mapping will be present in the business rules document
::::::* this can be added to the strategic [https://github.com/ehealthplatformstandards/KmehrToFHIR subproject KmehrToFHIR]
+
::::::* where will the mapping be made available ?
* General question: some patient will statements are registered at commune level by the citizen (f.e. euthanisa): this is out of scope of this project
 
::* it is the responsability of the citizen to make his GP aware and then it is up to code it in the EHR record
 
  
* The FHIR IG branch was previously named to consent, it is now [https://github.com/hl7-be/patientwill/ changed into patient will] to avoid confusions
+
* royal decree stated to implement the advance cared planning by July but this is not feasible, will be for next year
::* [https://github.com/hl7-be/patientwill/issues/2 issue 2] can be closed
+
* There is a need to have a complete overview of how caresets will have to be exchanged in the Belgian eHealth ecosystem. This is out of scope of this WG but will need to be tackled.
::* first [https://build.fhir.org/ig/hl7-be/patientwill/branches/issue-1/ draft of logical model] has been created : please have a look and provide your remarks
+
  
 
* Next actions:
 
* Next actions:
::* come prepared with first remarks on business rules document and first draft of logical model by 24 Aug (by all)
+
::* come prepared with remarks on the updated business rules document and first draft of logical model by 7 Sep
 
::* once the Royal Decree and other relevant documents (brochure) are available, they will be distributed to the WG members
 
::* once the Royal Decree and other relevant documents (brochure) are available, they will be distributed to the WG members
  
'''Next Patient Dossier WG meeting: 7 Sep at 9AM TBC'''
+
'''Next Patient Dossier/Patient Will WG meeting: 7 Sep at 9AM'''

Latest revision as of 08:26, 24 August 2023

Attendees

  • Anne Nerenhausen
  • Alexis Van Zeveren
  • Bart Decuypere
  • Félix De Tavernier
  • Hanne Vuegen
  • Hans De Keersmaeker
  • Jean-Michel Polfliet
  • Karlien Erauw
  • Pablo Christiaens
  • Sam Jocqué

Excused

  • Brecht Van Vooren
  • Filoretta Velica
  • Isabelle Pollet
  • Jens Penny
  • José Costa Teixeira
  • Nick Hermans
  • Philippe Baise
  • Tom De Backer
  • Veerle Michiels
  • Walter Bollaert

Agenda

  • Review business rules document & resolve issue/questions

Minutes

  • A new version of the business rules document has been distributed to the WG members last Monday in NL and French:
  • see also in issue 12
  • we go briefly over the document
  • please have a look at the document and raise your questions or remarks by next meeting
  • The work on the implementation guide has started
  • issue 11: consent.scope relation vs consent.provisioncode
  • the will code will be made mandatory in the logical model as this corresponds with the most important information, it corresponds with consent provision code in FHIR
  • the category is FHIR int'l model is mandatory and is very similar to scope
  • more investigation is necessary by eHealth platform
  • the representative (mandaathouder) is in the logical model but not in the IG yet --> it is the custodian
  • where do we get the INSZ number for a notary/judge ?
  • do we need another type of representative ? trusted person?
  • can the custodian be the same person as the performer ? normally not
  • concepts need to be clarified by INAMI
  • issue 9: update/remove links to artefacts
  • it is a temporary version of the IG, the links will be updated by eHealth platform
  • for all existing documents in kmehr and the valuesets used there, a mapping to the FHIR valuesets is needed
  • how are we going to tackle this ?
  • see 6.2.1 and 6.2.2 in the business rules WillCategory and WillCode
  • we will only add values to the existing kmehr values
  • it seems that some kmehr values have been removed and some have not been mapped
  • the mapping will be present in the business rules document
  • where will the mapping be made available ?
  • royal decree stated to implement the advance cared planning by July but this is not feasible, will be for next year
  • There is a need to have a complete overview of how caresets will have to be exchanged in the Belgian eHealth ecosystem. This is out of scope of this WG but will need to be tackled.


  • Next actions:
  • come prepared with remarks on the updated business rules document and first draft of logical model by 7 Sep
  • once the Royal Decree and other relevant documents (brochure) are available, they will be distributed to the WG members

Next Patient Dossier/Patient Will WG meeting: 7 Sep at 9AM