Minutes - FHIR Validation Group 2020-07-09
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Thursday, 28th May 2020, 09:30 CET
Agenda
- Welcome
- Review and Approve Agenda
- Updates on action items
- New projects
- Manzana diabetes project discussion
Participants
- Robin Bosman
- Anne Nerenhausen
- Karlien Erauw
- Damien Gruson
- Wei Zhao
- Kaoutar Abdellaoui
- Jose Costa Teixeira (scribe)
- Stijn Longin
Not present
- Isabelle Pollet
- Stefan Beerten
Minutes
Manzana project
Manzana Presentation by Damien: Project key highlights:
- The goal is to provide a risk reporting based on a standard questionnaire. The questionnaire is based on FINDRISC
- The Manzana profile includes patient-reported data and device data
- From BRUSAFE, the proposed architecture uses standard security / authorization layer: ItsMe, SMART-on-FHIR, IUA..
- Features / data sets:
- Mass, BMI,..
- BGL measurements
- Meal intake
- Insulin injections
- Relying on Be FHIR profiles: BeObservation, BePractitioner, BePractitionerRole, BePatient, Bundle
- Robin mentioned the Belgian LOINC codes: https://www.health.belgium.be/fr/centre-de-terminologie-terminologie-et-systemes-de-codes-retam
- Remarks:
- Data sets should be clearly identified (meal intake, BGM, etc)
- Observations about BGM should be ready for broader use e.g. as part of the RIZIV project.
- We think that for patient-provided data (i.e. the FINDRSC self-assessment questions), the FHIR Questionnaire resource may be a good approach (to be validated in the technical working group)
- A technical working group needs to be setup, and this group should take the next steps in defining the FHIR Logical Models, profiles, examples, (and Questionnaire instance) etc.
- This may imply some discussions on devices - whether the glucose monitoring device, or the app that the patient is using (less likely to be important now)
- In terms of Privacy and Access Control, this seems to have the same requirements as the other projects (access control, role-based, GDPR-aware, etc) for which separate discussions will be held - not in this project)
- Decision:
- Abrumet will continue the implementation of the underlying architecture (SMART on FHIR, ItsMe, etc) - that is not the scope of this project's standardisation
- The HL7 BE core team will provide to Manzana team, during the week of the 13th July a proposal for working groups, artifacts... etc.
- Everyone (Validation team and Manazana team) will work on the Project Proposal to make it ready for the Program Board, taking into account the remarks made during this meeting.