Minutes - Patient Dossier WG 2025-09-29
Attendees
- Brian Thieren
- Etienne Cantineau
- Ivan Coppieters
- Jan Lenssens
- José Costa Teixeira
- Karlien Erauw
- Sabine Withofs
- Walter Callebaut
Excused
- Anne Nerenhausen
- Benny Verhamme
- Brecht Van Vooren
- Hanne Vuegen
- Jan Lenssen
- Jean-Michel Polfliet
- Marcelo Romero-Cors
- Philippe Baise
- Werner De Mulder
Agenda
- Review the FHIR work on Child record FHIR IG
- FHIR draft logical model will have to undergo some changes
- refusalOfHearingTest" will no longer be part of the structured data and will be removed from the model
- no dependency
- following the other remarks
- There was a misjudgement in the past regarding bacterialMeningitis.
For the moment this is a part of the “PregnancyDetails” in the BeModelChildReport. Our businness pointed out that this is not a pregnancy detail. It applies to the baby. So the bacterialMeningitis must be move up one level so that it is directly an element of the BeModelChildReport.
• It’s ok to have one value for each of the following beObservations o inspectionPupilAbnormal o eyeMovementAndPosition o eyeRemarks So there is no result for each eye individually for this beObservations • General remark about the inspectionPupilAbnormal/eyeMovementAndPosition/eyeRemarks: Each of this observations can be performed separately and therefore be on a different day. • A general conclusion is that the age does not need to be explicitly mentioned anywhere, as it can always be derived from the execution/observation date. This is because the date of birth is an inherent attribute of the subject (BeModelPatient). • It is recommended not to implement a name change for eyeScreening. The eyeScreening is a result from a test with a device. • The eyeResults constitute the findings of a clinical research/examination. The renaming to “eyeObservations” is maybe not the best choice. Perhaps it could include a reference to a clinical examination/research? • The descriptions of several elements are not yet adequate. For example: The “Date”elements by inspectionPupilAbnormal/eyeMovementAndPosition/eyeRemarks have the following wrong description: “Date of eye screening”
- other changes have been made
- following the int'l discussions, how to do a pregnany duration which is about more than 1 person (pregnant mother & baby/babies) so patient/baby is the subject (in child record) and the mother is the focus and is optional (in case of adoption f.e.), cardinality will be changed in the model
- there are some observations in the model, these will be changed in the model to be in lign
- severeHeadTrauma is not observation, it is a problem and will be a BeProblem careset
- BeDocument: still to be decided in which repo to put, here it will become a dependency
- we will have 3 caresets: observation, problem & document
- the mother's data won't have to be documented
- once this is OK, we can move to a final profile
- valuesets: will be published separately but architecture is not yet ready
- Alignment is necessary b/w the business documentation and the FHIR draft logical model
- Ivan will update the Business Requirements once the FHIR model is stable
Action items
- review the proposed FHIR IG
- to decide where to put in BeDocument: in repo core or core clinical ?
Next meeting
- Monday 13 October at 11AM